Central & Eastern European ILDs Interstitial Lung Diseases  Patient Network

Central european ILDs Patient network


Caring for someone with ILD is a difficult and demanding task which can be both emotionally and physically draining. If you’re caring for someone suffering from ILD, let your family doctor know so they can advise you on your own health and refer you to specialised support if you need it. Oftentimes, there are national support groups for carers.

Remember to take care of yourself, as the day-to-day life of a caregiver can be challenging. Do not be afraid to ask the doctors and nurses supporting your relative or friend with PF for specific advice on how to best help them.

There are many support organisations for carers that can also help you through this experience. And in some EU countries, carers may be eligible for financial assistance or in-kind benefits – your doctor will be able to tell you more.