Make Connections, Get Help
How to find a support group
Joining a local support group can be helpful for you, as you can meet other ILD patients, their partners and carers and discuss and share your experiences. Support from your family and friends is essential, but reaching out to fellow patients going through the same experience can be particularly beneficial. Many support groups are organised within hospitals or in the local community – your doctor or respiratory nurse should be able to tell you more.
Finding out as much as possible about ILDs can help you feel more in control. Patient organisations are a good place to start because they provide information dedicated to people living with ILDs as well as mutual support. You can also get in touch with patients in your country through the organisations listed bellow.